Yea, though I
walk through the valley of the shadow of death, I will fear no evil,
for thou are with me: thy rod and thy staff they comfort me. Psalm
23:4
There was a big, white dog that lived
in my Mom's room for several months. I never had to feed it, never
had to walk it, never heard it bark. In fact, I couldn't even see the
dog. But Mom could. Many mornings I walked into her room to get her
up, and she would tell me about the big, white dog. I told her there
wasn't a dog in her room, but she would say, “Yes, there is. I see
it.” After a while I stopped arguing with her.
Mom had her first serious stroke in May
2014. I think she'd had some small ones over the years, because she
would lose certain abilities, often from one day to the next. But
with the stroke in May, she lost her ability to feed herself, to
stand on her own, and some ability to communicate. As the year went
on the losses continued to grow.
She had other hallucinations, even
before her stroke. They usually occurred when she was running a fever
or fighting a UTI. Human instinct is to try to clear up the
delusions. Some of the things she told me I thought might have been
dreams that she thought were real. I tried to tell her that, but
there was no convincing her otherwise. I found that the best thing to
do was to change the subject. There was a lot of changing the subject
after Mom's stroke.
Mom didn't always respond to us when we
talked to her, but as we waited while she sat on the potty, I would
talk to the family member who was helping me that day, and she
listened. We knew she listened, because every now and then she would
say something that was right on topic. Often if we were talking about
needing to pick peas or beans or tomorrow, she would say, “I'll
help you.” And we knew that if she were physically able, she would
have.
That was probably the most difficult
thing about Mom's illness. She was a hard worker. She loved to cook
and garden and grow her flowers. I've taken over all of those
hobbies. Working in the yard and garden during her illness was my
therapy. I've also become the pie baker in the family, so when I get
a craving, one or more of the other households reaps the benefits.
Mom lost most of her ability to express
emotion with her stroke. It was months before she laughed, and the
source of her amusement was her great-granddaughter. Nothing could
brighten Mom up like a visit from McKayla, who was 1 ½ - 2 ½ years
old during mom's illness. She came with her mom nearly every morning
to help get grandma out of bed. She loved to push the button to lower
the bed and learned to pull the blankets back. She knew the routine,
and woe to us if we tried to depart from it. McKayla also learned
that I usually had “lots” in the house. That was her word for
chocolate, and she rarely left the house without asking for lots.
My favorite memories are the glimpses I
got of the mom I knew before the stroke. When the children from
church came at Christmas to sing carols, Mom sang with them! On
another evening we had just put her to bed, and I was talking to my
sister-in-law about making chili for supper. Mary Ann commented that
my brother Ron didn't like it. I was surprised – I know mom made it
often as I was growing up. So I asked mom, “Didn't Ron eat chili
when you made it?” She said, “Sure, he did.” And it was her
clear, lucid voice talking.
One other night after she was in bed I was looking for a band-aid. I couldn't find any in the bathroom, and knew there were some in her room, so I slipped in. When I saw she was awake I told her I needed to get a bandage for my thumb. She said, “What's wrong with it?” Again as clear as a bell. I told her I had a paper cut. She said, “Oh, that gets sore.” As the 11 months of her illness went on those moments became few and far between.
And the white dog? One morning it was
dead. She told me when I walked in her room. “There's a dead dog in
my bed.” After a few attempts to convince her otherwise, I told
her I would call my brother to bury it. That seemed to satisfy her.
When my brother came to the house, the first thing she told him was
about the dead dog in her bed. He said, “I took care of it.” We
never heard another word about that dog.
In February of this year I began
attending a Caregiver's Support Group - Lunch with Ray. We don't
really have lunch, but usually get some of Ray's delicious cookies.
We meet at Sunnyside Baptist Church the 1st Wednesday of
each month. At the moment the time is 10:30 a.m., but we're
considering adding an evening meeting for people who work. It's a
great ministry, and if you live in the Toccoa, GA area and are a
caregiver, or know a caregiver who needs information or emotional or
spiritual support, this is the place to be. Even if your loved one is
in a nursing home or doesn't even live in the same state, you still
have the burdens and concerns. We've received some great legal and
financial information. Not to mention fellowship. Check the facebookpage for updates and information.
It's been six months since mom passed,
but I continue to go to the meetings. It's a morning out, there are
good cookies and great company. Most of all, it's an excuse to see
Mr. Ray Whiten, our fearless leader and a beautiful saint of God.
Even if you don't have any dead dogs in anyone's bed, you'll find the
group worthwhile. We all need a helping hand when we're going through
the valley of the shadow of death with someone we love.
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